Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,397 members • 15,062 posts

Impulse Control Disorder on Dopamine Agonists. TV Drama Mr Bates v The Post Office

I have been in touch with a producer of Mr Bates v The Post Office. This programme succeeded in forcing the British Government to pardon all those innocent...

I have been in touch with a producer of Mr Bates v The Post Office. This progra...

Joolsg

•8 days ago

76 Replies

Buprenorphine Trial

Some of you may be aware that I have been trying to get a trial of Buprenorphine for refractory RLS underway in the UK over the last 2 years.I initially...

Some of you may be aware that I have been trying to get a trial of Buprenorphine...

Joolsg

•10 days ago

83 Replies

Trazodone

Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every...

Hi , after trying very hard to navigate depression without drugs I have now just...

Rubynessie

•2 days ago

26 Replies

Stabilising buprenorphine dose

After months escaping from DA augmentation and with the help & support of many in this community I reached a period in late 2023 when I started on...

After months escaping from DA augmentation and with the help & support of many ...

davchar23

•21 days ago

68 Replies

absolutely disgusted.

I received a telephone call from my GP this morning regarding a request made by my specialist to prescribe Buprenorphine. My GP had to refer to the senior...

I received a telephone call from my GP this morning regarding a request made by ...

HipHop1972

•30 days ago

77 Replies

buprenorphine is not that harmless: sum

hi. maybe it is time to remind some sufferers. my last post was 7 months ago:...

snoemata

•4 days ago

25 Replies

Nausea & Buprenorphine

As some of you will have seen from my earlier posts I had succeeded in blocking RLS (after DA augmentation 7 months ago) by use of buprenorphine patches and...

As some of you will have seen from my earlier posts I had succeeded in blocking ...

davchar23

•25 days ago

64 Replies

update from Ruffabug (End of life plan)

A big thank you to those who kindly replied to my post of a couple weeks ago entitled HELP PLEASE TO REDUCE DOSE OF NEUPRO .To remind you I have terminal...

A big thank you to those who kindly replied to my post of a couple weeks ago ent...

Ruffabug

•3 days ago

20 Replies

Buprenorphine, Nausea & Zofran (Ondansetron)

I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side effect is very troublesome and there does not seem to be a satisfactory plan to...

I successfully take 0.4 mg day buprenorphine to treat RLS but the nausea side ef...

davchar23

•2 days ago

17 Replies

Gabapentin update

I am now taking 1800mg gabapentin, spread out between 5pm 7pm and 9pm, I do sometimes sleep quiet a lot but have trouble until 2am, I go to bed around 10:30ish...

I am now taking 1800mg gabapentin, spread out between 5pm 7pm and 9pm, I do some...

riverislow

•2 days ago

17 Replies

Worse since Wife had hip replacement

Wife been on ropinirole for 20yrs small dose a day. Since hip replacement RLS has got far worse had to increase dose to 1mg per day which is still not really...

Wife been on ropinirole for 20yrs small dose a day. Since hip replacement RLS ha...

Leg7

•11 days ago

33 Replies

Restless Leg Syndrome and Mirapex

Hello, I have severe RLS. I have been taking Mirapex for about 3 years. It was a relief to find something that helped,! After trying natural remedies with...

Hello, I have severe RLS. I have been taking Mirapex for about 3 years. It wa...

GreenChilie

•5 days ago

20 Replies

I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion

Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve...

Hello RLS people I’ve been here for a while reading & learning, getting the i...

Barnclown

•23 days ago

43 Replies

The NIHR Innovation Observatory is conducting a very short anonymised survey.

The NIHR Innovation Observatory at Newcastle University is conducting a very short anonymised survey. If any of you, in the UK, would be interested in...

The NIHR Innovation Observatory at Newcastle University is conducting a very sho...

Kaarina

Administrator•1 day ago

10 Replies

Tapering Dowm

Hi Everyone Hope you are all doing well. I am attempting to taper down from Pregabalin. I have successfully come down from 150 to 120mg but I cannot seem...

Hi Everyone Hope you are all doing well. I am attempting to taper down from ...

careerSquirrel

•16 days ago

35 Replies

Buprenorphine...help with prescription please!!

Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the...

Since my neurologist retired and I found a new one, my pharmacy is not accepting...

LanaCSR

•22 days ago

41 Replies

Escape from Augmentation part 2

I have been excellently helped by several forum participants in my "escape from augmentation" and am now at a stage where I need to report my story and ask...

I have been excellently helped by several forum participants in my "escape from ...

davchar23

•1 month ago

47 Replies

Augmented, now a drug holiday

Diagnosed with RLS 14 years ago. Since then, was on Pramipexole and augmented. Then prescribed Ropinerole and augmented. Saw a new neurologist (which I...

Diagnosed with RLS 14 years ago. Since then, was on Pramipexole and augmented. ...

PianoRunner

•11 days ago

27 Replies

Getting No Help and feeling desperate

I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me...

I have severe restless legs and am going around in circles with my doctor and ne...

Jezee

•19 days ago

35 Replies

Free of Dopamine Agonist But ...

Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is no exaggeration to say that I have not slept consistently this well for 30...

Today, with the help of Buprenorphine, I am about 6 weeks free of Neupro. It is...

RiversW

•29 days ago

43 Replies

Bad RLS.

Hi all, I've been hovering around these boards for a couple of years now but this is my first post. I am a 39 year old male. As a child and adult...

Hi all, I've been hovering around these boards for a couple of years now but ...

Wintermute

•5 days ago

17 Replies

Refused Buprenorphine tablet's.

I thought that I would leave you all in peace for a while but I had a terrible day yesterday with the Buprenorphine patch itching my skin and then, last, night...

I thought that I would leave you all in peace for a while but I had a terrible d...

Danni54

•12 days ago

26 Replies

Help desperately needed !

I’ve had RLS for years and I’ve tried a myriad of treatments. I have not a full nights sleep in years. Twice a night had been the norm until lately but now for...

I’ve had RLS for years and I’ve tried a myriad of treatments. I have not a full ...

Muftah36

•12 days ago

26 Replies

BREAKING NEWS. New Draft Guidelines by American Sleep Academy for RLS

https://www.relacshealth.com/media?ss_source=sscampaigns&ss_campaign_id=65f0805ba96cc4630a4616b5&ss_email_id=65f0fe1e0dc01b00c518c64f&ss_campaign_name=Big+News%

https://www.relacshealth.com/media?ss_source=sscampaigns&ss_campaign_id=65f0805b...

Joolsg

•1 month ago

44 Replies

Compulsive Eating

I have had RLS for about 20 years and been medicated with Ropinirole 0.50mg twice a day for around 17 years. In the last year I have noticed that some...

I have had RLS for about 20 years and been medicated with Ropinirole 0.50mg twic...

Gillyfran

•1 month ago

43 Replies

Having difficulty getting a prescription for opioids for RLS

I have quite severe RLS - the relentless symptoms are kept under control to some degree by 0.75mg of ropinirole and I am certainly not willing to up the...

I have quite severe RLS - the relentless symptoms are kept under control to some...

Faith_Hope_1

•25 days ago

36 Replies

Changing meds

I've been on Tramadol for almost a year now but am beginning to augment. I have been referred to a neurologist but don't expect an appointment until some time...

I've been on Tramadol for almost a year now but am beginning to augment. I have...

restlessinlondon

•5 days ago

15 Replies

Chakra mat

HiI've recently joined this forum and am interested that the Chakra mat (also known as the 'bed of nails') is not referred to (perhaps I have missed it?)....

HiI've recently joined this forum and am interested that the Chakra mat (also kn...

Annie1963

•26 days ago

35 Replies

Update on Weaning off of Pramipexole

Hello Everyone, I am posting in case this might be helpful to those going through getting off Pramipexole (PRAM) or thinking about it. I posted last Sunday...

Hello Everyone, I am posting in case this might be helpful to those going throu...

abby1003

•9 hours ago

4 Replies

Suboxone works!

As I stated in my first post, in May, 2023, I have had severe RLS for many years. I suffered augmentation after taking 4 mg Mirapex daily. In September, 2023,...

As I stated in my first post, in May, 2023, I have had severe RLS for many years...

Happygrandmother

•23 days ago

29 Replies

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