Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

Gabapentin Hell!

Hi all, thought I would share my recent experience with Gabapentin. I have had RLS since I was 18 and am now 74. I started on Pramipexole about 15 years ago...

Hi all, thought I would share my recent experience with Gabapentin. I have had ...

jeanjack

•2 days ago

29 Replies

Impulse Control Disorder on Dopamine Agonists. TV Drama Mr Bates v The Post Office

I have been in touch with a producer of Mr Bates v The Post Office. This programme succeeded in forcing the British Government to pardon all those innocent...

I have been in touch with a producer of Mr Bates v The Post Office. This progra...

Joolsg

•25 days ago

81 Replies

Magnesium, how much and tablet/spray

My RLS has become significantly worse over the last 6 months and I am reluctant just yet to take regular medication for the condition before trying other...

My RLS has become significantly worse over the last 6 months and I am reluctant ...

ChilliChocolateLover

•3 days ago

29 Replies

Buprenorphine Trial

Some of you may be aware that I have been trying to get a trial of Buprenorphine for refractory RLS underway in the UK over the last 2 years.I initially...

Some of you may be aware that I have been trying to get a trial of Buprenorphine...

Joolsg

•27 days ago

83 Replies

What is the best time of day to apply Rotigotine 2mg/24hr patch?

starting today and want to know what is best. thank you

Fucknuts1

•19 hours ago

14 Replies

TGIF! And thank God for Tramadol?

My answer is yes. Always do your own research. Tramadol is a combination opiate and the properties of an SNRI (antidepressant) and is very successfully used to...

My answer is yes. Always do your own research. Tramadol is a combination opiate ...

DesertOasis

•11 days ago

49 Replies

Opioid Treatment of Patients with Painful versus Painless Restless Legs SyndromeApril 2024Sleep 47(Supplement_1):A293-A294

And another - Introduction Recent studies characterized a clinically more severe and painful (compared to painless) form of restless legs syndrome (RLS)....

And another - Introduction Recent studies characterized a clinically more sev...

RLSLearner

•12 days ago

44 Replies

Stabilising buprenorphine dose

After months escaping from DA augmentation and with the help & support of many in this community I reached a period in late 2023 when I started on...

After months escaping from DA augmentation and with the help & support of many ...

davchar23

•1 month ago

72 Replies

Accessing Iron Infusion

hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid...

hey folks Wondering if anyone can help or has experience with the situation I a...

Xicara

•8 days ago

34 Replies

Neurology

Hi everyone, I finally have my appointment with neurology 16th May .My gp is taking me off pregabalin and advising amitryptaline (excuse the spelling) I...

Hi everyone, I finally have my appointment with neurology 16th May .My gp is tak...

Baz33

•9 days ago

36 Replies

Neutropenia /pregabalin

Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is new and wasn't present in my last results in march.It's a side effect of...

Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is ...

Baz33

•4 days ago

23 Replies

Going from no meds to pramipexole

Hi all I’ve had a bad RLS flare up due to over tiredness as we have a newborn. No chance of my sleep debt being reduced anytime soon, and I’m desperately...

Hi all I’ve had a bad RLS flare up due to over tiredness as we have a newborn....

BOWENATOR

•4 days ago

20 Replies

left methadone at home, urgent advise needed

I'm away from home tonight and for the first time forgot my methadone. I take 5mg every night. What might happen to me if I miss 1 dose of 5mg Tonight?!?! If...

I'm away from home tonight and for the first time forgot my methadone. I take 5m...

Rayme

•11 days ago

33 Replies

Awful repeated behaviours of hospital staff

Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two...

Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in E...

HilsK

•8 days ago

27 Replies

Leg stiffness when reducing Pregabalin

Hi all! I am reducing from 200 mg to 100 mg as the side effects are horrendous. Now getting back to 4 hours sleep and leg stiffness in the morning. Does...

Hi all! I am reducing from 200 mg to 100 mg as the side effects are horrendous. ...

Moonwalker1967

•8 days ago

27 Replies

Retiring Abroad with RLS

I'd be curious to hear from those who have moved to other countries when they retired either for a change of scenery or to get more out of a fixed income. Have...

I'd be curious to hear from those who have moved to other countries when they re...

ziggypiggy

•2 days ago

13 Replies

RLS & Pramipexole

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Prescribed .088mg Pramipexole by my GP n just told to increase when I complain! I...

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Pre...

Maymount

•13 days ago

30 Replies

Leg Pain

Hello...I am wondering if any of you have experienced not just the restlessness of RLS but pain? I have been diagnosed with RLS -my mother had it- but my...

Hello...I am wondering if any of you have experienced not just the restlessness ...

jebsat

•5 days ago

18 Replies

SUPPLEMENTS FOR RLS?

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEMENTS AND WANT TO MAKE SURE I AM DOING THE RIGHT THING. MAGNESIUM+B6 VITAMIN...

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEM...

piggytails

•18 days ago

33 Replies

Trazodone

Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every...

Hi , after trying very hard to navigate depression without drugs I have now just...

Rubynessie

•20 days ago

34 Replies

I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion

Hello RLS people I’ve been here for a while reading & learning, getting the impression this is a very well informed serious & supportive community. You’ve...

Hello RLS people I’ve been here for a while reading & learning, getting the i...

Barnclown

•1 month ago

43 Replies

bup tablets v temgesic

Hello - I am usually prescribed pure buprenorphine 0.4 tablets - either morningside or accord brand - however this month I was given Temgesic - I assumed they...

Hello - I am usually prescribed pure buprenorphine 0.4 tablets - either mornings...

Drls

•7 days ago

19 Replies

Buprenorphine and constipation.

Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot about the nausea it causes but not that other side effect of all morphine drugs....

Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot ab...

Ruffabug

•5 days ago

16 Replies

Buprenorphine...help with prescription please!!

Since my neurologist retired and I found a new one, my pharmacy is not accepting his order for the buprenorphine because he's saying it's for RLS and the...

Since my neurologist retired and I found a new one, my pharmacy is not accepting...

LanaCSR

•1 month ago

41 Replies

Getting No Help and feeling desperate

I have severe restless legs and am going around in circles with my doctor and neurologist. Being waiting months for a CPAP machine but now my doctor wants me...

I have severe restless legs and am going around in circles with my doctor and ne...

Jezee

•1 month ago

41 Replies

Temgesic Supply Problems

I have had an outstanding prescription for some 200ugm Temgesic tablets since the start of April. So I phoned them yesterday and it seems that they just cannot...

I have had an outstanding prescription for some 200ugm Temgesic tablets since th...

RLSofManyYears

•3 days ago

12 Replies

Buprenorphine transition from patch to tablets

Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch...

Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been fr...

RiversW

•7 days ago

18 Replies

Hello and thanks for having me in this group

My name is Jane and I've suffered from acute RLS for about 4 years now. I was prescribed an evening dose of 2.5 mg Ropinerole by a neurologist here in the UK,...

My name is Jane and I've suffered from acute RLS for about 4 years now. I was p...

Chocolate123Lab

•13 days ago

24 Replies

learning to help others

Hi I am new and was recommended this forum by a client who is a RLS sufferer. I am trying to gain insights and understanding from those with lived experience...

Hi I am new and was recommended this forum by a client who is a RLS sufferer. I ...

Betrue2u

•15 days ago

26 Replies

Cannabidiol (CBD)

i was wondering if anyone had tried Cannabidiol (CBD).

Brufax

•7 days ago

17 Replies

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